Closing the AD Gap
Introducing a New Global Survey
Right now, the majority of doctors assess AD from a physical standpoint. While physical signs and symptoms are important to look at, kids and teens, caregivers and families know there is often more going on – beyond the skin.
It’s time to not only reveal any gaps in understanding around the unseen impacts of AD, but actively seek to close them.
“With AD, there are ripple effects beyond the skin. For example, itch can impact a child’s sleep, which can impact the family’s sleep, which can impact school, work, relationships and more. These impacts can’t be ignored.”
Korey Capozza, Founder of Global Parents for Eczema Research, U.S.A.
That’s why Regeneron and Sanofi Genzyme commissioned the Atopic Dermatitis Global Adolescent & Pediatric Survey, or AD-GAP, a global qualitative and quantitative survey across 13 countries designed to explore the full impact of AD on the lives of kids and teens.
13 Countries. 3 Groups. 1 Survey.
In Japan, only the quantitative part of the survey was conducted.
Far-Reaching AD Impacts
AD impacts up to 1 in every 5 children globally, with up to 40% estimated to have the moderate-to-severe disease1-8. It’s a long-term, often unpredictable disease, that can impact kids and teens living with it, and those around them, in various ways. So when it comes to managing life with AD, different people can be on different pages.
Doctors and specialists often focus on signs, symptoms and treatment. Parents and caregivers often focus on their day-to-day well-being and routines. Kids and teens just want to focus on living their lives.
By taking into account all of these perspectives, we have an opportunity to better understand the full impact of AD, and bring positive change to the lives of kids and teens living with this chronic disease, as well as their families.
“By pausing to consider the different experiences between these three distinct groups of people, we can uncover the gaps in conversation. We hope, in time, to close these gaps through better dialogue—enabling the best AD care possible for kids and teens.”
Dr Stephan Weidinger, Professor and Vice Director, Department of Dermatology and Allergy, University Hospital Kiel, Germany
What have we learnt so far?
We asked nearly 4,000 survey participants to rank the relative importance of 16 factors that impact quality of life (QoL) for kids and teens with AD, revealed through the qualitative research.
Comparing their responses allowed us to identify similarities and differences between the perspectives of each group on these issues.
Find out moreDownload the infographic
Stay tuned for more information and findings from the AD-GAP survey in 2022.
Watch the World AD Day video to learn more about Malena's life with severe AD, and see how she’s leading the way as an Agent of Change in her community.Find out more
Understanding your AD and the factors that cause it can help you to manage it better in the long-term.Find out more